hey are any of my crohnie followers willing to google handouts on air and talk about ibd stuff or just whatever i want to test the platform out because i hope to use it for some youtube vlogs/etc and since it’s a public thing and supposed to be interactive i figure we might try and make content someone might get use out of. lemme know :B
sometimes i have cramps and they make me walk/move rigidly and i have a strained expression and i always think i come off as furious or stewingly unhappy when i’m really just like oh gawwddd it hurrtttsssssss
Oh hey good question thanks for asking! I get this now and then but I’m always happy to answer because it means people are paying attention to chronic illness stuff too!
So the spoon theory is here. But to summarize it’s a chronically ill person’s way of explaining how little things can take a lot of energy. She uses spoons as a measurement of energy. So say you start the day with 15 spoons (or however many) and you shower- takes a spoon, so does making food, eating food, getting dressed and makeup… get it? So it explains how and why being chronically ill can be so EXHAUSTING. It also gives an idea of how you have to plan for things when you’re chronically ill vs when you’re healthy you don’t have to worry about things like that.
The chronically ill community has taken to using the term “spoonies” to refer to themselves.
It’s important to note that as a healthy person (if you are) you don’t get to refer to your energy as spoons. It’s not the same, really. You have a normal amount of energy most likely and it just sits with people wrong. It’s like saying you understand what it’s like to be really chronically sick when you just… don’t.
You may hear me say “oh I used up all my spoons doing this” It just means I pushed myself way too hard doing something and now I feel like crap.
All in all, it’s a great way to better understand the chronically ill people in your life! It shows how someone like me with a chronic illness has to think about everything I do to plan for my health. So please, if you have a minute, go read it (I linked at the top!) and thanks for asking!
Reblogging this for her answer, it was an excellent explanation of the spoon theory and mine are definitely negative in numbers.
Sometimes it super gets me down that through my health I indirectly am excluded to a degree from some of my best friends’ social circle who’s foundation rests in quidditch. I am unable to play and as such have a sort of barrier standing in between me and the tribe. I will never be included in certain events and gatherings and that leaves me ever at the edge kind of looking in instead of being “one of us/them”.
Prompted after I realized most of this clique is gifting each other but that I found it out secondhand. I also haven’t anyone to mutually holiday gift except some relatives because of convention. My closest friends have celebrated my birthday but it really stinks to seem unimportant /unincluded in what I consider to be my social web, to the point of not celebrating December holidays together.
Maybe I’m just projecting though and I’m not actually as good of friends with as many of them as I think and…
Idk. Sometimes I have a hunch I’m seen as a kind of Luna lovegood type that people tolerate but don’t really understand or who think is weird /crazy
Living with a chronic condition can cause a lot of pent up anger because of your life. Anger because of all the things you don’t have the energy to do, anger because of how it affects your social life, anger because of the frustration of a condition that will not go away.